Data controller (CPUA) support for Region Uppsala
Each national quality registry must have a designated data controller (CPUA) responsible for ensuring that personal data is managed correctly and that the registry complies with applicable regulations.
Region Uppsala serves as data controller for a number of national quality registries managed by UCR.
UCR provides support to Region Uppsala in its role as data controller for the following registries:
- Infektionsregistret
- SIR Swedish Intensive Care Registry
- SOReg Scandinavian Obesity Surgery Registry
- SPAHR Swedish registry for pulmonary arterial hypertension
- SPOR Swedish Perioperative Registry
- RiksSvikt National registry for heart failure
- SWEDEHEART (including RIKS‑HIA, SEPHIA, SCAAR, TAVI, HLR, RiksSvikt and the Cardiogenetics Registry)
- SWEDVASC National registry for vascular surgery
- SRIR & SRL Radiology intervention registries
- SwedCampP Registry for cardiomyopathy
- TBI Traumatic Brain Injury Registry
- AURICULA National registry for atrial fibrillation
- Swedish registry for kidney stones
In practice, UCR supports Region Uppsala in all areas related to the data controller role. This includes delegated responsibility for ensuring that data protection requirements are met and that other applicable regulations are followed.
UCR provides advisory services, expertise, training and operational support to registry organisations on behalf of the region. The overall responsibility remains with Region Uppsala
For more information about the role of the data controller, responsibilities of other stakeholders and how these interact, please see:
Roles and responsibilities for national quality registries
For registries managed by UCR where another region is the data controller, UCR provides support to the respective data controller.
Contact us
Want to learn more about data controller responsibilities or registry support? Get in touch to learn more.